Karson

What is it with doctor's other than Dr. Swoboda that come in here and think that they need to tell us that he's not going to make it. It makes me so mad it's not their place they don't even know Karson the way Dr. Swoboda does. I've decided I can't talk to them anymore we know how sick he is but he's not going to die today were not dumb we know he is getting weaker. I told the PICU doc last night all of you doctors can say what you want but We just listen to Dr. Swoboda. When we got here yesterday this doctor told me it could be his bone marrow failing and usually when one fails the rest follow. She said all this crap that upset me then I had Dr. Swoboda come in and talk to me and I felt better . She is a fireball and I love it she's alway's putting them in their places thank heavens. Yesterday they gave Karson a blood transfusion and took some more blood trying to figure out his bone marrow . Dr. Swoboda thinks he's having a hard time keeping his red blood cells up maybe because of low iron and it has something to do with his bone marrow I can't remember everything they said but they gave him two iron transfusions and hopefully that will keep us from coming back every two weeks. They don't know why he's bleeding their just treating symptoms so we could be in the hospital for a day every 4 to 6 weeks for transfusions. ( Sorry my thoughts are all over the place) The new medicine he started on I believe is helping his stomach so their increased his feedings to 10 mls an hour. His blood work is much better today so we are going home later today (today is friday) I'm so happy!!